Picture this scenario. It would be a running contest with lines drawn in the dirt where to start and finish the sprint. On the command “Go,” both Ryan and I would take off at the same time. Seriously, my face would not only reveal how hard I was trying, but how determined I was to win. It was shortly into each child’s kindergarten year that I stopped racing them. A little embarrassing, but as Dave constantly says, “You can walk faster than you can run.”

Dave would not be very good at running right now either. Since being discharged from the hospital a week ago, yesterday was the first day we were up for the challenge of walking home from the clinic. It is just a half of a mile with a short uphill trek. We made it – as we did again today; but it wasn’t as easy as it was prior to his hospital admit April 5.

Tentatively, our team of doctors have informed us that May 6 could be the next visit to the hospital. If all goes well, the CAR-T Cell infusion could take place on that day. Dave’s next bone marrow biopsy is scheduled for April 29, and his chest x-ray is May 2. Our sprint to become infectious-free before the CAR T-Cell infusion will transition back to a marathon after he receives the infusion.

We want to send our thoughts and prayers out to the family and friends of Jefferson’s Gary Betts. One of our favorite Bear baseball players who played for Dave, Gary lost his battle with brain cancer last week. His marathon lasted over eight years, and he battled with the same tenacity he once did as a baseball player.

With Easter just around the corner, it seems appropriate to bring the bunny theme into the picture. But, I want you to picture that little pink bunny that never stops. With halting steps and an unusual gate, that bunny just keeps on going…and going…and going.

Staying in bed for long periods of time is very difficult for Dave. Especially when he is healthy, he just doesn’t slow down for long periods of time. So, one can imagine that the last 12 days drove him crazy. In fact, at one point when he was in isolation, he was determined to leave the room. He just needed to walk around and experience freedom. I stood at the door, arms outstretched, blocking his way. Reminding him he was quarantined, I soon realized that nothing was going to stop him. He walked out of the room, went to the right and kept going. I walked out right behind him and went to the left. I didn’t want to be a part of him getting busted.

Losing strength from being bedridden, Dave’s steps are similar to the energizer bunny. His steps aren’t quite as halting, but feel more like jello. On one of our short walks, he found a physical therapy room with an elliptical machine. He was like a magnet being pulled to it. As he steadied himself with the side bars, he was able to move his legs much easier. Instead of heading the other way this time, I had to capture the moment.

In addition, I quickly realized that the hospital food was less than desirable, so I would leave the hospital late afternoon, cook dinner, and return with high protein meals. Even so, he dropped over 15 pounds. It is going to be a challenge to regain this weight and rebuild his strength.

Tuesday evening, Dave was discharged and was able to walk out of the hospital without assistance. We will continue to report to the clinic daily, even on Easter Sunday. Our team at SCCA will monitor his counts and administer blood and platelet transfusions as needed. Within two to three weeks, chest X-rays and scans will be repeated in order to confirm the antibiotic is clearing up his lung infection. His progress will be shared with the research team. Hopefully, they will confirm that he is eligible for Car T-Cells again.

We all had faith that Dave would keep going, no matter what. That’s just who he is and it’s just what he does. To some, he’s a Jolly Rancher. To others, he’s Superman. This time, he was the Energizer Bunny. Please keep the prayers going. This is an ideal time to keep our forward momentum.

Dave’s reply to my morning text sums up this past week. Not only was this week exhausting, it reminded us how very fragile his body and immune system is. He was swimming for his life, and it seemed as if the ship was only drifting further away. We must stay diligent and mindful of how easily infection can make this journey seem like insurmountable waves.

The doctors made rounds this morning and are impressed with how Dave is responding to chemotherapy, antibiotics and medication. The most recent diagnosis revealed a fungal infection in his lung, which was caught very early. We were admitted to the hospital before these symptoms appeared. For some, a fungal infection would be a 4-6 week recovery. For one who has a suppressed immune system, it could take six months to two years. You can imagine our alarm when we heard this news, fearing we would be disqualified for the CAR T-Cell therapy.

Further research revealed that the infection can’t be “active,” which makes a difference in qualification. The medication for treating the fungal infection will prevent this from continuing to be an “active” infection. We are feeling exhilarated that this week’s setbacks did not sink our hopes of receiving CAR T-Cells.

Finally, once the fevers that are now surfacing nightly disappear, Dave will be released to recover at home. Home is now Pete Gross House, which is designed for Fred Hutch and SCCA patients. We are excited that CAR T-Cell therapy may only be postponed for three weeks. Of course, this all depends on his counts recovering, his chest x-rays clearing and infections disappearing.

I know that the Tag Team is just as excited as we are too. As we pause during this Lenten season to remember the suffering Jesus endured, let us not forget that He was walking on water right next to Dave during his swim this week. We felt his presence and trusted in His saving grace.

I turned that hill into a pile of gravel…

Looking back on what Dave has accomplished so far, I think many of us stand in awe at his tenacity, unrelenting spirit and grit. We have watched him fight through chemotherapy and battle through daily handsful of powerful drugs. More than a year has passed since this horrible disease put a mountain in his path. But in retrospect, it was nothing more than a hill. What he’s facing now looks more like Mt. Rainier in Seattle.

It’s only a mountain. Nothing but a big ‘ol rock. Only a mountain. It ain’t hard if you don’t stop. You just take a little step, a right and then a left then a couple million more but who’s counting…

On day 107 after the bone marrow transplant, relapse presented a bigger hill than the first. Without a missed step, Dave dug in and kept the pace and energy he had in the beginning. Walking to regain his strength and lifting light weights, he was readying for the next challenge. Arriving in Seattle, his goal was to be the exception to the rule and handle this with no complications and in record time.

There’s always one a little higher. Cause when I think I’m finally done, I’m staring at another one, so I reach down deep, and I lace ’em up tighter.

The disease is now like falling rocks, trying to block his path to the top. In fact, it’s the highest mountain that we’ve seen. Today the doctors have confirmed that the cancer is progressing with a vengeance, bringing ancillary obstacles as well. Mastoiditis, sinusitis, and possible pneumonia to name a few. This is all coupled with more pain than child birth, stemming from the cancer and a newly discovered bulging disc. Dave continues to reaffirm me that more frustrating than the pain is the inability to hear right now. Initially, loss of hearing in both ears is what forced us to the hospital in the first place.

Dave has also been diagnosed with Coronavirus, which is contagious. He is in complete isolation, and everyone who enters the room must wear a gown, mask and gloves. The plan moving forward is to start chemotherapy immediately for at least four days. His recovery from yet another round of chemo will determine when we can move forward with the CAR T-Cell infusion. The engineered cells will be kept on ice while Dave laces his boots up tighter and takes on another challenge.

It’s only a mountain. Nothing but a big ‘ol rock. Only a mountain. It ain’t hard if you don’t stop. You just take a little step, a right and then a left then a couple million more but who’s counting… -Dierks Bentley, The Mountain

Climbing this mountain may take a few more weeks than expected, but Dave is determined to climb it with the same tenacity, unrelenting spirit and grit we have witnessed when he climbed the rugged hills.

In just about everything we do, we know that how people prepare determines how they eventually will succeed. Four NCAA teams have prepared all basketball season in anticipation for this weekend’s Final Four match-ups.

Similar to the NCAA Basketball frenzied weekend, the Seattle Cancer Care Alliance team has taken the steps leading to the infusion. The team has been strategic and has tailored the protocol to Dave’s unique type of leukemia. The doctors are closely tracking his counts to keep ALL in check. Monitoring the progress and the engineering of the CAR T-Cells have been well calculated. Another bone marrow biopsy is slated for Wednesday, along with data collection to measure markers needed for research. Each time blood is drawn, several tubes are drawn for his doctors, and several more are shipped off for research. The tandem draw assures that all requirements are met for this clinical trial. 

Dave is staying as active as possible in order to gain strength and endurance for this treatment. Although they remarked that it will be more difficult than the bone marrow transplant that he had in October, Dave refuses to believe that and wants to be the exception. Further preparation requires three days of chemo in order to make room for the CAR T-Cells. This is scheduled for April 15-17. He will then receive one day of rest before the infusion. April 19 is the scheduled date for the infusion, although Dave needs to be in optimum health before that day.

An unexpected visit to the ER last night delayed this post. Dave was admitted to The University of Washington Medical Center early this morning. The diagnosis is Mastoiditis and Sinusitis, and he is receiving IV antibiotics for the next few days as an inpatient. The doctors are working quickly to resolve any health complications that could prevent the timing of the infusion.

Most importantly, every person we talk with about this CAR T-Cell treatment is beyond excited. The general feel is that this is a game-changer (their words; not mine). This game is a bit more important than the Final Four, but like any other game, we are preparing each day to reach the victory platform.